Almost every disabled person I know is devastated by the UK election result. We had hoped for a socialist government that would not only end austerity but dramatically improve disabled people’s lives.
We desperately need a new compassionate benefits system. We campaigned for the UK to sign up to the UN Convention on the Rights of Disabled People. We lobbied for improved and properly funded social care with a guarantee of Independent Living for disabled people of any age.
But none of those things look possible in the next few years. So how do disabled people prepare for the future?
As one of my wisest friends posted on her Facebook wall last Friday morning; ‘Don’t mourn, organise’. She is right, that’s the only way we can survive.
So here are some ideas:
Join your local disability group or Union
There will be lots of campaigning needed in the next few years. Being part of a supportive group is great for making new friends and finding other people who understand what you are going though.
All unions have retired members sections and Unite has a Community Section that in many areas throughout the UK has regular meetings and lots of activities and training.
We can all use new skills – you can learn via your Union or via your local disability group. If they don’t have any training available, ask for the training you need. Learning more about how to claim ESA, PIP or UC is likely to be useful for you and for someone you know. It’s always easier to help someone else fill in a DWP form than do your own.
Get a Benefits and Work subscription, it’s invaluable. They produce the best, easy to follow guides on how to claim. The first year subscription costs £19.95. If that’s more than you can afford, why not share the cost with a friend. A repeat subscription is usually 40% cheaper.
Help or support other disabled people
Whilst up-skilling can help you do some practical stuff around benefits, all of us have other skills we can share. Teaching crafts, passing on recipes, helping with internet skills, the list is endless. I’ve done genealogy for friends in return for a spare ticket to an exhibition I wanted to see.
Think what you can share and what help you might want.
Focus on spending time with ‘your’ tribe
Friendships were made or lost over Brexit and the same is likely to happen over this election. It’s very difficult to find real support and true friendships amongst people with radically different political views and values.
Choose your friends well, make sure they are positive people who can support you and won’t do you down or disrespect you.
That advice applies to family members too! Ration your time with those who stress you.
Practice self care
This is the most important way of looking after yourself. Be kind to yourself. Give yourself a treat – there’s so many sales on right now – you can treat yourself to some of your favourite bath or shower gel. Maybe you would prefer chocolate? If a special liqueur is more to your taste – cheers! Just don’t drink too much of it!
If you are short of ideas – go look at Pinterest. Or join The Mighty a great community for disabled people, which has lots of great posts and ideas. It might even tempt you to write your own post.
Whatever you decide to do – be kind to yourself and others.
Wishing you all a happy festive season!
My previous post was about the formation of two new campaigning groups within the Labour Party. However it did not give the back story as to why Project 125 and Party Participation and Disabled People were formed. This post explains why.
The “official” Disability group within the Labour Party is called Disability Labour (DL). It has a constitution and is recognised by the NEC, Labour’s governing body.
The way the group works, however, is bizarre. Whilst there is a committee consisting of a Chair, 2 Vice Chairs, a Secretary and Treasurer the people elected to these posts at the last AGM were not elected by the membership of Disability Labour as a whole. The electorate consisted of a small group of people who could afford to travel to Manchester to a venue that was not fully accessible. They elected members to an Executive Committee. The EC then agreed officer posts within themselves. Hardly democratic. There were requests for the meeting to be streamed to allow others members such as myself to participate. This was refused by the Chair. There were also calls to allow officers to be directly elected by the entire membership. This was also refused, despite it being allowed within the constitution.
Many members, including myself did not receive the calling notice for the AGM until 2 weeks before. This is a breach of the 28 day rule for calling a DIsability Labour AGM. The irony of the AGM being held on 1st April was not lost on us!
There is another absurd issue. All correspondence to members of Disability Labour can only be sent out via Labour HQ. The Officers do not have membership information and are reliant on others to send out mailings. I cannot fathom any reason for this. I’m a membership officer for a ward in my local Party. I receive the full membership list for that ward together with regular updates. Of course, I have to sign a confidentiality and proper use agreement. Why can the same system not operate within Disability Labour?
I cannot ascertain the number of members DL has. There are 97 members in their Facebook group. The majority of this group are vociferous in their dissatisfaction of the way the organisation is currently run.
The committee does not appear to meet at regular intervals. Members of DL are rarely given details of these meetings and in two years I and other members have never had sight of any minutes or decisions taken. There do not appear to be any audited accounts either.
Two of the current officers tell members that they have tried to resolve the issue of the membership list. However when some members have offered to assist with this process they have not received any response from the officers.
A recent thread on the DL Facebook page has asked if members are happy with the way DL is run. Not one person responding to that post is satisfied with the current arrangements.
I am also a member of LGBT Labour. Their membership system is totally different. No data is held by Labour HQ. Members who are eligible to join the group apply directly to the group and membership records are kept securely by the Secretary and Membership Secretary. There is absolutely no reason why the same system cannot apply to DL membership keeping. Nothing in the constitution of DL prohibits membership data being held by DL officers.
If membership data were to be transferred to DL officers, all that would be required is to inform members of the change and given them the opportunity to decline to have their personal information transferred.
There is nothing in the DL constitution that prohibits members from attending an EC meeting as observers. Previously members have not been given any information about when or where the EC is meeting. This week is the first time I’ve seen the date of an EC meeting. One officer broke ranks and chose to disclose it. As yet we do not know where the EC will meet. I have asked for details, I hope I will be given them, but I’m not holding my breath.
All of this bureaucratic nightmare has a major consequence. DL is not able to represent disabled people within the Labour Party. Many of us experience discrimination and side-lining. This is not acceptable. All sections of the party must comply with the Equality Act 2010.
Party Participation and Disabled People and Project 125, have been launched as a direct consequence of DL’s failure to advocate for its members. We wanted to bring these changes through DL, but that doesn’t seem possible at the moment.
DL should also be supporting the new Labour Shadow Secretary for Disabled People Marsha de Cordova in her role of challenging Tory policies thst cause misery to disabled people.
250 Labour Party members have joined Party Participation and Disabled People and Project 125 has 275 Labour members, both groups more than doubling the DL Facebook group membership.
The two new groups are buzzing with ideas and have committed volunteers wanting to contribute. The skills we have are welcomed and the collaborative working is a joy to be part of. Websites are under design and campaigning materials are being produced.
The Labour Party seeks to be ‘For the many and not the few’, but within its own ranks disabled people are often marginalised or ignored. Many people with disabilities cannot attend ward or constituency meetings. Venues are inaccessible to wheelchair users, there is no loop system or microphones to enable deaf people to participate. This breaches the Equality Act 2010. As yet, no one has sued their local Party. Some are entitled to, as the EA 2010 applies to any organisation with over 25 members. Thus it applies to the vast majority of Labour Party Constituency Organisations.
The current situation is a disgrace. As a Labour Party member I’m ashamed that DL is so badly run, and that it seems impossible for ordinary members to have any meaningful involvement. Change is needed. Change will happen, either within DL itself or by involvement from MPs and the leadership.
The question is when and by whom? It can’t come soon enough for me.