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Posts tagged ‘PIP’

Scooter v Wheelchair – which to chose

342D81D3-0B22-443F-96E1-822AC749AE52It was International Wheelchair Day on 1st March, so I wanted to write something appropriate. 

One of the early decisions many disabled people face when they find walking too painful or difficult is whether to buy a scooter or a wheelchair. This blog post is not going to be about which make or model to buy. But will help you think about which of the two options is best for you.

Over 12 years ago I started off with a small scooter.  I was able with help, to take it apart and put it in the boot of my car. It also had a removable battery that I could take inside my flat to charge. It was very useful when I was going off to museums and galleries, places where the floor was even. But it was very uncomfortable on rough ground and definitely didn’t like steep inclines. 

But it was the reactions of other people that shocked me.  I was told on many occasions that I was too young to need a scooter!  This usually happened when I asked people to move so I could get past them. Other comments that hurt even more were; “You can’t really be disabled, otherwise you would have a wheelchair”. And “You just choose to use a scooter cos you’re too lazy to walk”. 

My scooter really helped to give my a greater level of independence. But as my spinal arthritis began to deteriorate, I found the seating on the scooter was getting too uncomfortable. I decided to ask for a referral for an NHS wheelchair. I was delighted to be told that I was eligible for one of medical grounds. However, because the property I was living in was not wheelchair accessible I was ineligible on accommodation grounds as they only supplied wheelchairs for indoor use! 

Sadly this rejection is all to common. Often when people are referred to Wheelchair Services – WCS they are not getting a suitable chair. For those people who can-self propel, it’s obviously easier to push in a lightweight chair. In the wheelchair groups I belong to on Facebook there are frequent posts from people who’ve only been offered a heavy chair, not the lighter one they need. Often they are told; “Your partner can push you.” That can increase a dependency that is often already fraught. Some WCS are now just giving people a voucher, which doesn’t cover the cost of the right wheelchair. So many of us are forced to apply to charities or set up a Go Fund Me. 

It’s disgraceful that so many disabled people cannot get the right wheelchair. Surely it should be a basic right for our independence? 

WCS are another part of the NHS which is now privatised. Hence the lack of funds and inappropriate equipment being offered. 

I was fortunate to be able to apply to a nursing charity for funds to buy my first electric wheelchair. The difference it made to my ability to get out and about was wonderful. I was able to go out for longer periods. The chair is much more compact and easier to manoeuvre in small spaces. I also have a deep memory foam cushion, which means I can sit for longer periods without pain.

But the greatest change for me was the attitude of other people. Once I began using my chair nobody ever queried my disability. Nor did anyone make inappropriate remarks about my need to use it. It even helped me to get a higher rate of DLA (this was the benefit before PIP). I had been on the lower rate for mobility for some years but my mobility has worsened. My first application for review was turned down. I appealed and went in front of a tribunal. I used my scooter at the interview and was promptly refused again. When I managed to speak about this with other disabled people I was told I should have borrowed a wheelchair and taken a carer with me! I wish I’d known that previously.

On my next DLA review I wrote about my wheelchair use and provided confirmation. I was awarded both components of DLA at the higher rate on a indefinite basis. I was so relieved. 

So for me a wheelchair is the best choice. I have friends who prefer to use one of the larger scooters and pay for it from their PIP. Whilst these scooters are very comfortable, they are very bulky. Having to leave them outside a shop increases the chance of them getting stolen too, especially in London. 

My one caution if you opt for a scooter – never buy a three wheeler. Why? They are inherently more unstable, and I have seen some appalling injuries when people have been tipped off them. There are lots of four wheeled scooters and even a five wheeled one available.

I hope whatever you choose brings you lots of freedom.

Surviving the Election Result

Almost every disabled person I know is devastated by the UK election result. We had hoped for a socialist government that would not only end austerity but dramatically improve disabled people’s lives. 

We desperately need a new compassionate benefits system. We campaigned for the UK to sign up to the UN Convention on the Rights of Disabled People. We lobbied for improved and properly funded social care with a guarantee of Independent Living for disabled people of any age.

But none of those things look possible in the next few years. So how do disabled people prepare for the future?

As one of my wisest friends posted on her Facebook wall last Friday morning; ‘Don’t mourn, organise’. She is right, that’s the only way we can survive.

So here are some ideas:

Join your local disability group or Union

There will be lots of campaigning needed in the next few years. Being part of a supportive group is great for making new friends and finding other people who understand what you are going though.

All unions have retired members sections and Unite has a Community Section that in many areas throughout the UK has regular meetings and lots of activities and training. 

Up-skill

We can all use new skills – you can learn via your Union or via your local disability group. If they don’t have any training available, ask for the training you need. Learning more about how to claim ESA, PIP or UC is likely to be useful for you and for someone you know. It’s always easier to help someone else fill in a DWP form than do your own. 

Get a Benefits and Work subscription, it’s invaluable. They produce the best, easy to follow guides on how to claim. The first year subscription costs £19.95. If that’s more than you can afford, why not share the cost with a friend. A repeat subscription is usually 40% cheaper.

Help or support other disabled people

Whilst up-skilling can help you do some practical stuff around benefits, all of us have other skills we can share. Teaching crafts, passing on recipes, helping with internet skills, the list is endless. I’ve done genealogy for friends in return for a spare ticket to an exhibition I wanted to see. 

Think what you can share and what help you might want.

Focus on spending time with ‘your’ tribe

Friendships were made or lost over Brexit and the same is likely to happen over this election. It’s very difficult to find real support and true friendships amongst people with radically different political views and values. 

Choose your friends well, make sure they are positive people who can support you and won’t do you down or disrespect you. 

That advice applies to family members too! Ration your time with those who stress you. 

Practice self care

This is the most important way of looking after yourself. Be kind to yourself. Give yourself a treat – there’s so many sales on right now – you can treat yourself to some of your favourite bath or shower gel. Maybe you would prefer chocolate? If a special liqueur is more to your taste – cheers! Just don’t drink too much of it! 

If you are short of ideas – go look at Pinterest. Or join The Mighty a great community for disabled people, which has lots of great posts and ideas.  It might even tempt you to write your own post. 

Whatever you decide to do – be kind to yourself and others. 

Wishing you all a happy festive season! 

A card to prove you’re disabled

Access to venues without the hassle

Have you ever turned up to a theatre or exhibition and discovered you needed documentation to prove you were entitled to a discount?  I certainly have and am sure so have most disabled people. 

Now that problem is solved by Access Card.

This card verifies that you are disabled and in most cases are in receipt of a disability benefit such as DLA or PIP. If you do not get these benefits there is plenty of space to explain your disabilities on the form. It is also possible to download a paper copy of the form and send it in by post.

I’ve just filled out my application on-line and it was relatively easy.  Though I did have some difficulties. There seemed to be no way of moving from one box to the next to input my name and address details. I had to keeping hitting the next button at the bottom of the page which was annoying.

You will need to have a copy of your benefit letter, a copy of some photo ID and a separate photo for use on your card. All of there were easy to upload on the the Access Card site. 

Now I have to wait for my card and I’ll update this post when it arrives and I’ve used it.

 

 

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